We had a great night away celebrating Meghan's first anniversary of her shunt placement!  It was great to get away with the kids and focus on them and hearing them laugh and have a fun time.  I love the simple things in life! 

 

 

Unfortunately, Meghan has become ill yet again :(  Today is day #4 of being sick.  She's been hit pretty hard this time around....poor girl.  I wish I could trade places with her...I'd give anything to do that!  We were concerned for a while about the possibility of this illness being due to a shunt failure, but luckily it's just a viral bug.  On Wednesday, I consulted with Childrens regarding her symptoms.  They felt it was a viral illness, so they said that our first step is to have her evaluated by her primary doctor for dehydration and to see if it's just a viral bug before we bring her up for an MRI to check her shunt.  They said if she's ill due to a viral illness that we have our answer on why she's sick and they don't need to do an MRI.  She was seen on Wednesday by her PCP and he did full blood work up and strept test.  She tested negative for strept and the blood work indicates viral illness - her white blood cell count was pretty low.  Right now, we are home monitoring her with her PCP.  He called this afternoon to check on her.  So far we have avoided having her admitted for IV fluids and hopefully it stays that way!!  Today - day #4, she's kept everything down, but her energy level is very low, she eats very little and sleeps/rests most of the time.  In February, she was prescribed Zofran (anti nausea med) for car sickness.  I didn't want to give it to her when she first got sick incase her vomiting was due to shunt failure.  I didn't want the Zofran to mask any symptoms, but since its a viral bug, I decided to give her a dose of Zofran on Wednesday night.  Since that dose, she hasn't vomited.  I sure hope she turns the corner soon and gets some spunk back.  Her poor little body has gone through too much.

Her 3 month post op MRI of brain and spine has been scheduled for May 9.  She'll be sedated and the MRI should take 1.5 hours.  We're praying for the best possible news!!!  This is MRI #5 so we are getting to be pro's :)