Mighty Meghan

Mighty Meghan

Monday, October 21, 2013

Meggers has been working really hard for the past couple of months on one of her therapy goals...taking steps down stairs.  In order for her to complete this goal, she needs to walk down an entire flight of steps on her own for 3 consecutive home visits from her therapists.  While walking down an entire flight of stairs is still hard for her to do, what she CAN do is walk down the last step on our stairs - unassisted - like a PRO!!!!!  She is SO proud that she can do this all on her own!  This goal is dedicated to Meghan's runner, Jenn, through the group I Run 4 Michael.  Here's a little video:

 
We finally got results on the blood work from the Endocrinologist appointment.  Everything came back normal, except for her IGF-1 which is a growth hormone study.  Normal range for Meghan's age is between 54-144.  Meghan's came back at 19.  So.....we MIGHT have an explanation as to her lack of growth and energy, which would possibly be that Meghan has a growth hormone deficiency.  The Endo is concerned with the low IGF result and wants to recheck in 3-4 months.  If the IGF number is still low at the re-check, she would like to do more testing.  Sometimes I wonder how much testing can be done on a little body.  Seem's like she's had every test ran on her already!  Meghan has an appointment with the Geneticist in 2 weeks so we will bring this up to her at that appointment and hopefully she will provide more insight on this to us.  Fingers crossed.

Luke and Meghan have been having fun writing back and forth to their pen pals.  Two of their pen pals are from Texas and another is from Louisiana!  This has been great for Luke to be involved in!
 


1 comment:

  1. You are awesome Meghan! I'm so proud of you:) Keep up the great work! Hugs sent your way today and every day. :)

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