September is a BIG month for our little lady!!  The month of September is Hydrocephalus awareness & Chiari Malformation awareness month AND September 15-21 is Growth awareness week.  We walked to raise awareness of Hydrocephalus on September 7th.  Our team, Team Mighty Meghan, had 19 walkers and we raised $800 as a team, and all of the Minnesota teams combined raised $55,684 (to date)!!!  All of the money raised goes towards research to find a cure.  This was our 2nd year walking to support our Mighty Meghan, and everyone else affected with Hydrocephalus.  A huge thank you to those to walked, donated, or both!  We are forever grateful for your support! 

Meghan started Pre-school on September 2nd.  AHHHH!!  It's so crazy that my baby is in school!  There were some big tears the first time she rode the bus, but otherwise she seems to really like school!  There are 6 kids in her class.  She has a bus buddy, Wyatt.  She has OT/PT once a week and speech twice a week, while at school.  Her speech is really coming around!!!  Since school, she has learned the words me & you.

We've always known that because of Meg's neurological conditions, she has a higher risk of having a seizure than typical people.  She had her first seizure the evening of September 12.  She had a febrile seizure, lasting between 8-10 minutes, which was caused by a sudden spike in her temperature.  It was a very scary night for Jeff and I, and it was hard to see what a seizure does to a person.  It took her a while to fully recover from it.  I spoke with neurology, and because of Meghan having this seizure, they are moving up her MRI to be done as soon as possible.  At this point, a shunt malfunction is not a concern because she is not running a fever, irritable, vomiting, or hard to wake up.  They would also like Meghan to have an EEG to look for seizure activity.  Most likely, she will have a 1 hour EEG done.  She will be prescribed Diastat (a rescue medication) incase of another seizure.  The EEG and MRI/skin biopsy have not been scheduled as of yet, but should get scheduled this week.