Meghan was discharged last Saturday and we are so happy to be back home!  Meghan was probably happier than we were to be home.  She was out like a rock shortly after we got home and took a 2 hour nap!

Everything is going well at home and we are keeping Meghan as comfortable as possible.  We are working hard at building her strength back up as much as she allows us to.  Right now she tolerates 10-15 minutes of playing/working with her and then she's ready to rest.  She did start to sit unassisted on Tuesday, so that is great to see again!  She still isn't able to crawl or walk.  She knows she can do these things, but her body isn't allowing her to do these quite yet so she gets very frustrated.  She is allowing me to help her walk - we just need to get her legs to cooperate.  It is hard as a parent to see her struggle to do things she was able to do 9 days ago.  I know she'll be able to do these again - I just need to be patient :)  She is getting stronger each day!! When she was discharged, we were sent home with 8 different meds to give her.  However, some of these are only given to her as needed.  She is down to 5 meds that she gets daily.  She should be down to only 1 med by the end of the weekend.

Meghan likes to have Molly by her a lot.  Molly has been good therapy for Meghan!  Luke comes home for a couple hours after school and Meghan lights up when she sees him.  Luke was pretty worried about his sister and it was good for Luke to see his sister and to see that she is doing well!  He doesn't like to see her in pain, or to see her incision, but he always has to check on her as soon as he gets home to see how she's doing.  Meghan is very happy to have a break from doctors but Luke isn't so happy.  He got strept throat while Meghan was in the hospital.  I think this is the 4th time in less than a year so he has been referred to see an ENT tomorrow to see if he needs his tonsils removed.

Jeff and I met with Meghan's therapists this morning regarding her IFSP (Individualized Family Service Plan).  We reviewed Meghan's goals from this past year and wrote new goals to add to her plan for this year.  We are all very pleased with Meghan's progress!  Speech therapy has been added to her plan and she will start that next Wednesday.  We are so lucky to have such amazing therapists working with Meghan!!! 



On my way home!  I was given a couple pain meds before I left the hospital so I could handle the bumpy ride home.

Molly keeping an eye on me



I love Molly!



Look what I can do!!!