What a difference a week makes! Meghan is walking again and is off all of the medications she was sent home on. YAY! Other than her neck being slightly stiff, she is pretty much back to her normal self again. It is SO great to have my cuddly, little helper back!! Luke is pretty thrilled to have his partner in crime back, too :)
Since surgery, one of the first improvements I noticed was that she now sounds like she has more of an open airway - her voice sounds clear and not as raspy. Also, one of her symptoms prior to surgery was chocking and gagging when she would eat. She did not have these issues at every meal, but it would happen about once a week. We are now almost 3 weeks post op and we have not had ANY chocking or gagging issues!!! This is huge as Jeff and I would be on edge every time she ate just waiting for her to choke - thank goodness we are both certified in first aid as we have had to put our training to use with her a couple of times. The best part since surgery......we have never seen Meghan as happy or as smiley and giggly as she has been these last couple weeks. I think for the first time since birth, she isn't in pain (other than from surgery).
Meghan has finally been cleared from her doctor to switch from her infant carrier to a big girl car seat that faces forward! As of Thursday, she weighed 19.6 pounds with clothes and shoes on - so not quite at the 20 pound mark, but given her age, he okayed her to switch. Meghan thinks it's pretty cool to see what's going on now while we're in the vehicle. Hopefully facing forward will help with her car/motion sickness, too!
Therapy resumed on Wednesday and Meghan did great. I wasn't sure if she'd tolerate the entire hour of therapy but she did. My mom came over to watch the daycare kids so I could sit in on therapy with Meghan.
We placed our 2nd shirt order on Wednesday! We are definitely getting awareness out to the public!!
I am in the process of putting together a walking team for the Hydrocephalus walk. Unfortunately, an exact date hasn't been scheduled for the walk yet, but I am guessing it will be toward the middle of September like it has been in years past and it is held in the Cities (Fridley if I remember correctly). If you are interested in walking with Team Meghan, or if you'd like to donate towards the team, let me know by emailing me (jennasuess@comcast.net) and I would be more than happy to get you information regarding the walk or how you can donate. I am brainstorming fundraising ideas to raise money for Team Meghan! The more money we raise, the closer we are to finding a cure!!
Sounds like my little girl is doing awesome. I am so happy for her and I am sure it has been a relief for Mom and Dad. She has gone through so much but she is a fighter and has proven that. I can hardly wait to see her again. We will have to Skype soon. Take care and I love you all.
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YAY it sounds like Meghan is doing awesome! Way to go!!! We would like to participate in the walk. Looking forward to seeing you all soon.
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