Today, we got the best news we have received in the past 13 months! Meghan's brain MRI looks great! The size of the ventricles (hydrocephalus) are normal in size and her cerebellum (bottom part of the brain) is decompressed and is now sitting inside of Meghan's skull right where it should be (Chiari). CSF flow anteriorally and posteriorally is freely flowing! It was AMAZING to see the pre op MRI images compared to today's images. Complete difference (I will post pics when I get the CD)! The syrinx in the thoracic area (lower spine) is still there, but it decreased in size, which is what we were hoping for! Thank you God!! He would like to see Meghan in 6 months for neuro check and to check on her development, but he does not feel a need to do another MRI for a year - unless symptoms come back. Thank goodness. Today was Meghan's 5th MRI and her 3rd sedated MRI (2 of the MRI's she was not sedated for). She always came off of sedation real nicely and woke up calmly. That was not the case today. She woke up FIESTY and very disoriented. She didn't know what she wanted and fought us for a good half hour straight. Man this itty bitty 20 pounder sure is strong for her size! The nurse gave her 2 icies thinking the cold would snap her out of her fit. It helped while she was eating, but once she was done, her fit continued. The nurse said this behavior is very typical of kids ages 2 and 3 after waking up from sedation. Since her surgery 3 months ago, she grew 1.5 inches and gained 2 pounds. Pretty amazing considering it took her 9 months to gain 2 pounds before surgery!
I feel like a huge weight is lifted off my shoulder after today's news. I am so proud of Meghan. And I'm so proud of Luke for being so caring for his sister. For a 7 year old, he has seen his little sister go through more than any brother should see his sister go through. Luke is a rough n tough boy who picks on his sister as much as he can - BUT...he cries with her when she hurts - he cheers her on when she reaches a milestone - he holds her hand when she is sick - teaches her sign language so they can "talk". Bless his heart. He got up extra early this morning just to hug Meghan before we left for the cities and to tell her good luck today.
On top of all of this...Meghan has started signing "I love you" to us. I can't hear her sweet voice say those 3 awesome words quite yet, but I can watch her sign it to us and feel the love from her.
Tonight, I just feel amazingly blessed!
That was awesome news and that little girl is going to take off like a rocket now and she will catch up on everything she is behind in before you know it. Grandma needs to start learning sign language I guess. Give her hugs and kisses for me and tell her Grandma loves her.
ReplyDeleteGrandma Linda