Where does the time go?  This is the last week of school for Luke.  I can't believe I will have a 2nd grader!!  To celebrate the end of his school year, Jeff and I are taking him to Mankato to his favorite place to eat - just the 3 of us.  He could use some one on one time!

Finally, we got some good news!  The urologist looked at Meghan's ultra sound images and he feels that it is not necessary to do the VCUG on Meghan right now!!  He said since her urinalysis came back negative, she hasn't had any UTI's yet and since the fluid on her right kidney is mild, there is no need to put her through the procedure yet.  He gave us a list of symptoms to watch for.  If she develops any symptoms, gets a UTI or if the fluid increases in the kidney, she would need to have the procedure.  So, for now, she will have her next ultra sound in July and we will meet with the urologist afterwards to review the images and talk about a long term care plan.  I am just so happy that she is in the clear for now!!  Meghan is doing super in PT/OT and speech.  She will get a little break during the summer months.  Instead of having therapy 8 times a month, she will go down to 4 times a month as the therapists run on a summer schedule - lucky them!  She is doing excellent with feeding herself and is close to mastering the scooping motion.  We are still working on stabbing food with the fork.  She has also mastered throwing a ball overhand and kicking a ball.  We are working on placing shapes in a shape sorter.  This is a little trickier for her, but she can do it.  She has the patience to work on placing a shape in the correct spot, but has trouble manipulating the object to fit into the correct spot.  She is walking great with her lift in her shoe.  Her gait improves when she walks with the lift...her gait isn't as wide and her legs have a forward pattern.  When she doesn't walk with the lift, her gait is a little wider and she swings her legs out and then forward.  The lift is definitely helping!  She has also mastered 6 signs and we can introduce another group of signs.  In a couple weeks, we will introduce a picture board to Meghan.  The ST took pictures of common things Meghan requests during the day.  She will print out the pics and will laminate them and place them on a Velcro board.  The idea is for Meghan to go to the board, take the picture of what she wants and bring the picture to us so we can get it for her.   She is beginning to use her tongue and mouth to form "words" instead of only using the back of her throat, so this is a sign of progress!  Still no new words, but it's a good sign that she is starting to use her tongue and mouth when babbling!  Words will follow soon! 

Upcoming appointments - Meghan's pre op this Wedensday (this is because she will be sedated for MRI) and her 3 month post op MRI on Thursday.  We will meet with the neurosurgeon that afternoon for MRI results.  Then on June 4 is her Geneticist appointment.  A couple weeks after that, Luke has his pre op for his tonsillectomy and will have his tonsils and adenoids removed on June 20.  Meghan will have an abdominal ultra sound in July and will meet with the Urologist afterwards.  Then, fingers crossed, we will get a little break from doctors for a while :)