Meghan had a long day of therapy and doctor appointments today.  I had the day off so I was able to sit in on therapy...wish I could do that more often!  After therapy, we left for her doctor appointments.  I was nervous about her ultra sound - last time she did not do so well with it.  Today, she was such a trooper!  She walked right in the room when the ultra sound tech called her name and I laid her down on the table and she let the tech do what she needed to do!  No crying whatsoever!  I think we were in and out in 15 minutes!  Then we headed up to the Urologist appointment and she walked right with the nurse when we were called back!  This is pretty huge as Meghan has been very apprehensive at doctor appointments so it was great seeing her be so willing to go with the flow today! Today was the first time meeting with the Urologist and he was super!  Meghan has a little more fluid in her right kidney today than she did 4 months ago.  However, this could be because she had a fuller bladder than last time.  The severity of Hydronephrosis is graded from 1-4 with 1 being minor and 4 being severe.  Today, Meghans was still a Grade 1, but closer to being Grade 2 than she was in April.  Because Meghan has never had a UTI, he feels comfortable not doing any invasive testing right now and waiting a year to see her.  However, if she would get a UTI within the next year, we would automatically have to do a VCUG.  Although we are waiting a year to see him again, her Hydronephrosis will be monitored via ultra sound every 3 months (for a different condition) and if the fluid continues to increase, we will be back to see him.  He did let us know that because of her syrinx on spine and Hydronephrosis, she could be difficult to potty train, but time will tell!  Otherwise, everything looked good on the ultra sound images and no tumors were seen!!  I always feel relieved when I hear that!  Meghan also had the AFP test (tumor marker test) done today and we should have results by Tuesday.  We waited 9 weeks to hear results of the chromosome test, and we just so happened to get those results while we were at Childrens!  Everything came back good, but she does have a duplicated area on either the long or short arm of the X chromosome (I can't remember what the geneticist said).  From what I understand, females with a duplicated x chromosome have no other health conditions associated with the duplication.  I am happy but a little bummed that we don't have an explanation as to why Meghan has the conditions she has.  The geneticist was bummed she wasn't able to provide us with answers yet, but we will be back to see them in November and have another geneticist look at her and possibly have more in depth testing done.  She also couldn't give us an answer as to if any of Meghan's conditions will be passed down to her kids until further testing is done.  She did put in a referral for Meghan to see an Endocrinologist.  We all agreed it is time to find out if Meghan has any growth issues going on - especially since there isn't a chromosome issue affecting her growth.  She is at a stand still height and weight wise.  Meghan knows no different, but it literally breaks my heart when I see a 15 month old tower over my 26 month old.  It could very well be that Meghan has no growth issues and will just be small, but as parents, we want solid answers from professionals!!

Of course, a trip to see the doctors in the cities just wouldn't be complete without a stop at Chili's!!  We love Chili's!

Sleeping beauty after a busy day!  Tuckered out!!