Where did the summer go? This summer flew by so quickly. Luke is back in school already! We had a great summer and we got to spend lots of time with the kids, which is what is most important to me right now!
Now that school is back in session, Meghan will get back into therapy twice a week. This will be great for Meghan! We recently learned from Meghan's speech therapist, that Meghan has Childhood Apraxia of Speech. CAS is a motor speech disorder. Kids with CAS have problems saying sounds, syllables, and words. The brain has problems planning to move the needed body parts for speech (lips, tongue, jaw). The child knows what they want to say, but their brain has difficulty coordinating the muscle movements necessary to say the words. I think we've known for a few months that there was something off with Meghan's speech. She is SUPER smart and she knows what she wants, but has difficulty putting her wants into words. We are going in the right direction by doing sign language and speech therapy with her. Meghan is due to have her 6 month review of her IFSP (therapy plan and goals) in the next couple of weeks. She will then be re-tested in February. How she scores will tell us what our next step will be.
There is only 3 more weeks until the Hydrocephalus walk! So far, our team has 18 walkers! If you plan on walking, please register online in the next week or two! The walk coordinators would like to have everyone registered atleast a week before the walk, so they can plan accordingly as to how much food and beverages to plan on. If you need help registering, let me know and I'd be happy to help! Our team's goal is to raise $500! So far, we have raised $380! We are so close to our goal! If you, or someone you know, would like to donate to our team, be sure to collect the donations before the walk! To donate, enter donations you have collected, or to register to walk, just click this link: http://walk4hydro.kintera.org/faf/search/searchTeamPart.asp?ievent=1077849&lis=0&kntae1077849=0D4E954D632D4981A2CF781E6E025D35&team=5568491. Help us reach our goal...every little bit helps! All of the money raised goes to the Hydrocephalus Association to fund research for a CURE! As of a couple days ago, there were 17 teams registered.
Meghan will get over the speech hurdle as she is a fighter and she won't give up until she succeeds. Grandma is glad that you are working on your sign language. Grandma needs to start practicing so I know what you are saying. Maybe I should have mommy send me the signs so I can practice before the Hydrocephalus walk. I am looking forward to seeing you in a few weeks. Love you.
ReplyDeleteGrandma Linda